Volunteering Opportunity: Volunteer Coordinator with The Ehlers-Danlos Support UK

Before you can register your interest for this opportunity you must be registered as a volunteer.

To provide a positive, informative, sensitive and safe environment for those affected by EDS to share,
learn and form a community.

Opportunity Type: Long-term Commitment

District: Bedford, Hertsmere, St Albans, Watford

Location: Indoor

Time of day: Weekday Afternoons

Practical Considerations: Quarterly support group meetings of 2-3 hours in length, plus regular planning and feedback.
Checking regional Facebook group several times a week
Checking and responding to emails as necessary
Attending occasional Area Coordinator meetings
Some Area Coordinators run meetings more regularly, but there is no requirement to do so.

Requirements: Relevant qualification or training, Will require a criminal record check (DBS)

Suitable for: Aged 26 and over, University students

Does this opportunity provide wheelchair access?: Yes

Full Description:
What will i be doing?

• Facilitating a minimum of 4 support group meetings in
your local area every year, in a
disabled friendly venue or virtually, using an allocated
fund to cover the cost.
• Checking your local social media regional group
(Facebook) for messages and replying or
signposting to the office or a local service. Checking new
members to the group on the
Membership list before accepting.
• Keeping up to date with training implemented by EDS UK
and having guidance meetings as
needed.
• Giving facts and figures to your CM after each meeting
• Checking your EDS UK email accounts at least once a
week and responding to queries
• Encouraging attendees to join The Ehlers-Danlos Support
UK as a member
• Signposting members to other support services
• Liaising with fellow Area Coordinators in your region or in the UK

Support in the role:

• A full induction programme
• We have a closed Facebook peer support group for Area
Coordinators only to share
experience and ask for information.
• The CM’s and office staff will be there to support you
within your role and can be in contact
with you as much or as little as you need during office
hours, and we encourage regular
contact with us. We use the AC Facebook group and
email to update all volunteers on any
information we think they might find useful.
• Monthly virtual Area Coordinator support group meeting
on Zoom open to all volunteers.
• Monthly Manager led AC meetings sharing information,
best practice and taking feedback
from volunteers.
• A dedicated volunteer's website
• Regional Messenger volunteer groups
• Peer mentoring with an experienced Area Coordinator if requested