The Ehlers-Danlos Support UK

The Ehlers Danlos Support UK (EDS UK) was set up in 1987 to support, advise and inform those living with the Ehlers-Danlos syndromes. We aim to help them live a full, active and positive life. We remain the only UK based charity that exclusively represents and supports people with all types of EDS.
We run regular events and conferences to bring our community together, produce literature and merchandise to increase understanding and improve management of the condition. We have many support groups around the country providing members with a local peer support network, both face-to-face and online.
We run a freephone helpline which is available to everyone including people with EDS, friends, families, carers, and healthcare professionals.
EDS UK strives to educate the medical community, promote continuity of care, improve accurate diagnosis and provide information on specialist treatment and management of the condition. We also support vital research to further understand EDS, improve its management and work towards a cure.